Deborah Ann Woll and Boyfriend, E.J. Scott, Kiss and Cuddle While Raising Awareness for Choroideremia in New PSA (VIDEO)
Aside from being a TV star, True Blood’s Deborah Ann Woll seems just like your average girl, but she’s far from it. In addition to juggling a blossoming career, she is fighting to save her boyfriend’s sight.
Deb’s beau of almost 5 years, E.J. Scott, has been battling Choroideremia, a rare “genetic and degenerative” eye disease that eventually causes blindness, since 2003.
“Chroideremia: It’s hard to pronounce and even harder to treat,” Deborah says in their new PSA.
It’s clear that she is his biggest supporter, seen kissing him goodbye at home and at congratulating him at his races for a cure, in addition to holding his hand throughout the entire video.
“It attacks peripherally, so I don’t have almost any peripheral vision left, and it will keep going until like a tunnel vision and then the central vision will be affected as well,” E.J. explains, adding that there is no cure or treatment for the disease.
So for now, E.J. is running 12 marathons in 12 states in 12 months, setting a fundraising goal of $12,000 per race in 2012 — all while blindfolded. And Deb will be by his side the whole way.
"I thought he was very brave to be so open about it. I hadn't heard of the disease before I met E.J., and I was very moved by his story," she tells People. "I thought that anyone would could have such struggle in his life and still be positive and motivated is a very special person."
And even though E.J. says it’s “difficult to get funding and awareness out there,” he knows “the worst thing for a cause is silence.”
“A lot of people put blindness on their list of worst fears, and you can understand why,” Deb says toward the end of the video. “It’s on mine,” E.J. responds.
With only a few months left until E.J.’s marathons end, it truly is a race to cure Choroideremia. He is currently auctioning off DVDs and True Blood memorabilia on eBay, but sadly, he says, “The donations have been less than I’d hoped.”
You can check out the PSA below and then learn more and donate at his website, ejscott.com.