Grey's Anatomy star Chandra Wilson (Miranda Bailey) may not be a doctor in real life, but that doesn't mean she doesn't help solve medical mysteries.
As the 44-year-old tells the Los Angeles Times, it was her diligence that helped doctors discover that her 20-year-old daughter has mitochondrial disease — a chronic, genetic disorder in which the cells of one's body don't generate enough energy.
As Chandra says, cyclical vomiting was the first clue of her daughter's condition, and she started keeping thorough notes.
"Every time she'd go into a cycle of vomiting, we'd still go back to the hospital, but I would just notate everything that I saw to try to find some pattern of consistency," she explains. "That's when I learned how to become an advocate. And I walked around with my big old folder with a true log of every episode. You can't expect that a hospital or doctor's office is going to follow everything 100 percent with all the patients — so that's where you come in."
Thanks to her meticulousness, doctors identified the disorder, allowing Chandra to connect the dots of her daughter's medical past — and to plan for the future: "Now we have something to look up, something to do. The name meant everything — you'll hear that with mitochondrial sufferers across the board. It's the name that gives you power to be able to look for something and at least try to get to where you need to get."
And even though her daughter is an adult now, Chandra tries to keep involved with her well-being: "I keep my advocacy there — I say, "I am no longer your manager, I'm just your consultant. So whenever you want to talk to me, I'm right here!"
Sounds like the perfect prescription!
Source: MitoAction, Los Angeles Times